Welcome to my journal.
It's about my life, my feelings and my family with 6 children. The twinsgirls of 10: Yinti and Djenné. Nyo (14, autistic), Thami (15, dyslectic and ADHD), Lars (17), Stef (20 ADD and Asperger), and their father (PDD-Nos, autistic traits).
This blog is not written to offend, but it's a way to vent.
I'm allowed to. I'm managing a nuthouse. LOL!
wednesday 6 sept
And then there was sun! And a letter in the mail stating that the guarantee of the dryer only starts at october 2006.
So that's ok. Makes me wonder that if I had asked a thousand euro they would have given it. LOL!
I felt relaxed and went under the shower, planning to go to the shopping center, just to be able to leave the house.
Then it turned out Lars was back at his room. He can enter it without us seeing it... and he went to school quite visibly.
So.... problems!
We had a huge argument, and I was very angry, just because I felt so helpless.
Can't push a kid to school with a knive touching his back..
And ofcourse Jim did nothing.... just had a listening attitude...
Then I told him to be a real father, ring school and tell these are the problems we expected all the time.
Lars is facing the final exams this year, and he has severe failure anxiety.
Schools always told me I was wrong.
Just because the regular tests failed to surface it.
But there's one simple question to ask parents.. the questions asked so often at primary school and never asked after that: "Does he like to go to school, and how does he go to school when he's facing a test?"
So Jim phoned school, and was phoned back hours later.
Someone who is a teamleader now. New.
She wants to see Lars at school tomorrow and have a talk how to help him. Oh..let's keep our fingers crossed she can get through to him.
I can do without daily drama like this. Last week I felt glad he seemed to have overcome it. How naïve. They just had introductory lessons. Arghhh!!!!
Just when I had my calm back Thami jumped into the house. He was all over the place. Had left school without saying something to anyone and biked home for 45 minutes and still was all over the place.
Before we heard what was the matter school called to tell he was on his way and they were not tolerating pupils leaving school without permission.
GOOD!
So we told them we wanted to hear Thami's story first and then Jim would bring him to school and they all could have a talk.
How lucky it was on a wednesday and Jim was at home.
One of the bullies had been bullying him last week and this week. Saying his nose was not good enough and he looked like he had cancer. Can't translate the words that were used well.
They even put it on paper...
The boy who bullies uses drugs and Thami suspects he had used drugs that morning as he was very aggressive from the first moment he entered school. He kept threatening Thami all morning, and then he caught him in the hallway and put his fist before him.
Went further and then wanted to hit Thami. On his fist is/was a ring with a large sharp stone, so Thami was very afraid his face might be ripped open, especially he was promised that would happen.
Thami escaped and went home.
So we called school, explained what Thami said and told them we were right behind our boy. Kids should be and feel safe at school.
And then Jim went with Thami to school, had a good talk, and had the head almost jump on his chair when he read the note.
We were told action would be taken.
When Jim was to school with Thami, Djenné came home from schoolcamp. She's had a wonderful time.
And had plenty of stories to tell.
It felt like I sat in another movie.
tuesday 5 sept
***Chuckles*** Thanks for wishing me sun...
But we didn't see one ray at all.
So much for forecasting.
But it was hot. I've got a splitting headache.
So instead of lingering under the dark green leaves of the trees I was upstairs, sorting out stuff and going through my meds.
Now I have to pay again myself for glucosestrips and lancets, I had to see how many I still have left and put those with the first expirationdate on top.
I still have left quite some packages, so I feel OK. Still I think it's rediculous that self-control is only available for people who use insulin.
My glucosevalues aren't stable. I guess because of the daily stress and the uneven bodily activity.
Well, it's clear "the system" doesn't care about me, and there are times I don't care about my own health.
Right now I do...
The other woman at the bagpipelessons mailed.
Remember I couldn't find anyone to go to the contest in spring, and none to go to the celtic festival last week.
She went both times, both times after I asked if I could go with her. Both times she washed it into my face how much she bought and all that.
I don't like competition like that. I'm OK with people telling what they have bought and done, as I'm not jealous at all, but there's something in the way she deals with matters that makes clear she's very competitous and she doesn't want to keep it for herself.
Well, I have such a different life that I know I can't live up to her and I won't.
It's a matter of attitude. I'm very happy with the glengarry I already have, and I don't want to feel uneasy because I don't have socks and other stuff bagpipers need.
Fun is that I like things that are used by others. The glengarry comes from an old welsh bagpiper. A kind and caring man. And knowing this will mean I'm wearing it with pride, not because it's a glengarry itself.
I've always been like that. I love the history to things and it's like the spirit of the people adds the value. Not the prize.
So instead of gazing at internet at the bagpipes to decide which one I want when I'm finished studying the chanter and start bagpiping, I would love to get in contact with a bagpiper who stops this year and wants me to buy over his things. (As far as it's possible with the colours of our band.)
And lets hope the money will be available.
Even if it's a loan I'm OK with that, although I hate debts. But I want to go and play at weddings, funerals and such, so I'll earn it back.
Tomorrow Djenné comes home from schoolcamp. I'll be happy to have her at home again.
monday 4 sept
Sun! We had sun!!!
Djenné left with all her bags and stuff, accompanied by Stef.
How strange to see her go, although she sleeps elsewhere more often. What worries me is the way people deal with each other at that school. They try, they do, but I'm afraid of them going to swim. She can't swim well.
The weather asked to put the laundry outside. The wind still was very strong, and at the end of the day most laundry was nearly dry.
That's different from the last weeks, when it took ages!
Got a wonderful mail from Sessan. I was completely lost for words, which doesn't happen often! LOL! She's sending me a wonderful chandelierlamp for the dollshouse.
It feels like someone far away can read my thoughts... I was thinking about the dollshouse when cleaning the room of the girls, and when throwing away an empty toothpastetube. I saved the lid to make something from it.
I needed to search some things on internet, but the connection was so very slow that I'll do it another day.
Instead I did a lot of things in the house. Preparing for fall, putting away too tiny clothes. And in the meantime the wind blew and made me think about being at sea. The waves must be great!!
It was nice to have a sunny day again. Noises from children playing. People were so much friendlier, even the weatherwoman on TV!
Before I knew the day was over again. So often I have plans to sit down during the day, to take a bit of sun, and when I sit for 15 minutes over the complete summer it's worth to be published in the guinness book of records.
sunday 3 sept
Fell asleep yesterday with the wind blowing forcefully through the trees in the garden.
Warm air flowing in.
I was amazed this morning how warm it was... and not so amazed it was tremendously humid too. It was still raining... after all these weeks! Are they up there trying to replace the ocean?
Staying with the weather: the german weatherservice is announcing some metereological records on wednesday.
In the meantime we're fighting our way through puberty issues of the boys.
Lars has found out that incense is interesting. Yea, I thought so too at his age. But I wasn't allergic then.
After three extra inhalations to counteract the effects on my asthmatic lungs, we've send him into the shower.
He caused problems just by walking past me.
In a few minutes he'll be downstairs being my lovely smelling kid again. And he'll be surprised how his hippy-area smells... all after sweet soft roses... because I sprayed the area below the stairs to his little castle with rosewater. LOL!
Checked Nyo's schoolthings. He was given gelpens by Jim last week. What I thought happened: all the papers are full with inkspots. Like a fountainpen had been leaking all the ink.
I'm sure meeting his new mentor will be quite interesting. I'll immediately know if he made up an image about us... or not.
People who don't know about the problems of parenting an autistic or spectrumchild are assuming the parents didn't do well in the way they brought up their child.
They don't realise that all the good lessons and intentions don't reach very fertile soil. They just end up in a bottomless bucket. It's not that the child won't accept the teachings... it can't.
Well, one can say it's never boring to have children like these, because you never know what's going to happen next.
He was allowed on his father's labtop this evening before going to bed. He asked if he was allowed to use it after school tomorrow. His father told him he needed the thing at work... So we had a fullblown angry teenager again.
He went upstairs angry... When I went to look why it was so quiet there he was sitting at his own computer. "Mom, I was forgotten I have one too."
***sigh***
Right now everyone is in bed, except Stef. Djenne's bag is standing here. Tomorrow her schoolcamp starts. I'll miss her!
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