Welcome to my journal.
It's about my life, my feelings and my family with 6 children. The twinsgirls of 10: Yinti and Djenné. Nyo (14, autistic), Thami (15, dyslectic and ADHD), Lars (17), Stef (20 ADD and Asperger), and their father (PDD-Nos, autistic traits).
This blog is not written to offend, but it's a way to vent.
I'm allowed to. I'm managing a nuthouse. LOL!
september 16 2006
Ít's decided I'll get the grants for caring for children with special needs. It feels like an acknowledgement.
It's not much, but it's some to cover for the extra expenses.
As they are paid already, the money can be spend on necessities.
So I've bought a bycicle. A cheap one, as they are stolen so many times here. It's not worth to buy a more expensive one.
The guy in the shop said I could ride a bit through the shop to see if it fitted me. He said it was not ready a 100%, but Ok to use a bit.
So I did...
I had some speed and then the saddle moved backwards... me sliding back and lossing the paddles. Lol!
The break didn't work, so I saw nothing else to do than poke my foot in the shelves.
He got all pale. LOL!
Later the day Stef was supposed to fetch it. Ofcourse he went too late, so when we found out something didn't work properly the shops were closed.
As the walking to and fro the shopping centre had made my hip to be very painful at all I could nothing else but decide not to go to bagpipe lesson.
I intended to fetch the bike and ride home. Not to walk the distance twice.
The bagpipe lesson is rather far from the busstop, and it's two stairs.. so it's a no-no.
A bit of a relief that fate made me not able to take the exam. And to give me a bit more sleep. After such a hot day I really needed it.
I've asked to be able to take the exam on a later date.
I've already decided that if they kick me out, I will work through the lessons myself. I want to play the bagpipes and none will take that away from me. (I hope. Never challenge fate. LOL!)
The weather has been very hot again. It's not nice, because it's far too humid.
I like however to walk into the garden and snif at the roses.
I feel very rich that they're flowering again.
To treat myself with some rest and to make everyone think I was very bussy I made the ghostbusterpages.
Feel silly though, making them with such weather. I so treasure summer, that I don't like autumn.
Most of the time it means grey, dark weather, only a short time of coloured trees and days full of rain. They have said today is the last day of nice weather.
So strange that soon we'll be wearing thick clothes and need a lot of stuff on us at night.
september 15 2006
I can't even imagine how I will experience life when I'm sitting in the old people's home and I have nothing to do than waiting for someone to bring me to the loo, waiting from breakfast to lunchtime and lunchtime to dinner. We have to find a way to have a pleasant old age with enough to keep our minds going. I think if not enough happens in a day I'll think I'm alseep or alreadu dead.
"We", not Jim and me, but friends. I would love to have my own little house in some kind of park with other people I care for, and please... with normal children laughing.
So what happened yesterday? I have almost forgotten...
Far too much has happened this week.
Lars has applied for a working trip to Spain.
We now have all the information. It's organised from a European grant. 125 students from all sorts of areas are grouped according the profession they are studying for. They will visit study-related bussinesses in Spain. In Lars case: everything to do with the graphical world: printing etc.
i spoke to the person who organises it. He called me because I mailed him about the bad way things are organsed in this stage. He agreed, and explained how that happened.
As there are 42 applications at Lars'school for 10 to 12 places, there will be selection.
The teacher said too many times to me he didn't take part in the selection procedure.
So I slipped in some casual remarks about us thinking polite behaviour is a must and such things. Can't harm... and he called me. LOL! I had the feeling he wanted to know a bit more about us as parents.
The school is a sisterschool of the one I have been a chairman of the parents board for a long time, and we have a very exceptional name, so I can understand he was curious. Well, we had a good laugh and it was fun to speak with him. maybe he looks very dull and not interesting at all, but on the phone he was quite a pleasant person.
Next week Lars will hear if he's places. I so hope so!!!!!
Nyo came back from school on thursday very upset.He saw hos former mentor and asked for help, and ofcourse the suituation was ended, but not before the boys whispered that they would hurt him badly outside the schoolarea.
Jim had the day off on friday, so he brought Nyo to school. Had a talk there. In the afternoon the boys would be confronted.
Before that I wrote a mail to school telling them about what the boys had threatened, and aslo said that we wouldn't hesitate to either move Nyo to another school, or report about the threats to the police.
september 13 2006
Attention: blogurl has changed. Comments above here under siggy.
Woke up this morning with a terrible headache. Als a soar throat, stuffed nose.
On the willowsill a lot of fine dust.
Who says it's healthy sleeping with the windows open?
I was referred to an organisation that would help with the application for Stef's wished for livingsituation.
Stef has asked me to arrange everything, because he forgets everything.
I was so glad to get some help with all those forms. They make me feel irritated because I feel pushed into boxes. I overheard other mothers at psychiatry and they were so very content.
Well I guess you need to be very special or downright stupid to be allowed through the front door.
Got a mail back yesterday: Stef has to apply himself, and they can only inform...
So to be precise: I'm not offered the same help other people get.
Well, I'm going to fill in the forms tonight and send them in.
The information on which livingsituation is best for him is not our decision, because there's almost nothing in the area.
And apart from that....They either grant the application or not.
So I'm very disappointed.
Yinti came home from schoolcamp.
After all she had a great time. Problem is she labeled her fear for the playevening in the woods, and her stress for the theatre evening, and her tiredness to..homesickness.
That way she was granted a phonecall home every evening. Smart kid!
She got angry when I told her I understood her game. But she came back and appologised.
Well it makes clear that the teachers are not as observant as they think they are. Yesterday I heard at the phone that she was tired to tears. She can't cope with going to bed after midnight. She's 10!!!!
Well, more about her schoolcamp when the photo's are ready.
Lars brought a mail home about the trip to Spain.
There have been many applications for this free fourteen day journey. They'll visit graphical industries and bussiness all over the country.
Now they said in the letter that the kids have to come thursday evenings with their parents to a meeting. Those kids that aren't there are not allowed to go on the trip.
Ofcourse that didn't feel right at all.
So I was ready to jump right on it when Jim told me there was no way he could go. First he had a meeting and after that dinner and a party because a collegue was leaving.
Even if he would leave after the meeting he still would be too late for the schoolmeeting, as it is in another location and very difficult to reach for people without a car. So I mailed the school a very good letter.
In the meantime he put the recycling stuff outside. They were supposed to come after 12. The last time they came a couple of minutes to six. Now they came one minute past 12!!
Well, the large stuff was already outside so that was great, but the rest was still in the garden, as we're not allowed to put the stuff outside too early. And the time before last time it was all ready outside, but other people put things to it, and then they wouldn't take it with them anymore.
Well Jim was very angry and kept angry all day.
I really need a bycicle. Djenné has taklen over the second hand one that was bought before the vacation. Part of my hippain is due to that thing.
I need a good bike... but they're expensive. And as I'm at the last mm of the moneystring.... Well, you know that rant.
So it's the cheepest one on sale... I know it's not fitting me well, but what can I do??
Thought Jim would bring one, as the shop is nearby, but not near enough for me to walk.
Last chance today, as he's away tomorrow evening (shopping centre is open then.)
He kept telling me I had to go to the parents evening this evening, but I can't without bycicle. So it felt like he was rubbing things in... although he just had a PDD-NOS temper.
He kept having a bad mood untill he went to Lars's parents meeting (We had three this evening.).
When he came back he was quiet.
29 C and very humid
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